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008 110829s2012 enka fs 001|0|eng|d
020 9781444347029|q(e-book)
020 9781444334722|q(pbk.)
020 9781444347029|q(PDF ebook) :
020 9781444347050|q(HTML ebook) :
020 9781444347036|q(ePub ebook) :
020 9781444347043|q(Mobipocket ebook)
040 StDuBDS|beng|cStDuBDS|dStDuBDSZ|dUkPrAHLS
050 0 RT81.5|b.H36 2012
082 04 610.730721|223
245 00 Handbook of service user involvement in nursing and
healthcare research /|cElizabeth Morrow ... [et al.].
260 Chichester :|bWiley-Blackwell,|c2012.
300 xvii, 203 p. :|bill.
505 0 Contributors viii About the authors x Preface xii
Structure of the book xv Acknowledgements xviii Part I
Preparing 1 1 Perspectives and expectations 3 Approaching
service user involvement 4 Political and research contexts
of involvement 7 Historical roots and social movements 8
Perspectives of service user involvement 12 What is known
about the impact of involvement? 14 Current challenges 15
2 Concepts 18 Service users 19 Involvement 21
Representation 22 Experiential knowledge 24 Empowerment 25
Participation 26 Models of involvement 27 A theoretical
framework for approaching service user involvementin
research 30 3 Designing involvement 36 Deciding who to
involve 37 Building in opportunities for involvement 40
Research methods and approaches to involvement 42 Planning
involvement 48 Payments 48 Research ethics and governance
54 4 Working relationships 59 Making connections 60
Working environments 61 Roles and responsibilities 66
Legal and ethical issues 67 Training and support 68
Communication 70 Feedback and reflection 72 Embedding
service user involvement 72 Part II Learning 77 5 Patients,
clients and carers 79 Patients who are receiving health
care 80 People who are very sick 83 People with rare
clinical conditions 85 People who find it difficult to
access services 85 People who do not have the capacity to
consent 87 Carers 89 6 Involvement over the life course 93
Children and their parents 93 School-age children 97 Young
people 100 Adults 102 Older people 103 7 Seldom-heard
groups 106 Involving seldom-heard groups 107 People with
physical disabilities 108 The deaf and people who are hard
of hearing 110 People who are blind or partially sighted
111 People with learning disabilities 111 People with
degenerative cognitive impairment 113 People with mental
health problems 113 Black and minority ethnic groups 116 8
Service user-led research 120 Personal health research 121
Volunteer networks 121 Service user-led organisations 123
Charities and not-for-profit organisations 125 Experienced
service user representatives 127 Academic service user
researchers 128 Part III Evaluating 133 9 Quality 135
Indicators of successful involvement 136 Documenting
service user involvement work 137 Using reflective
techniques 139 Reflexivity and service user involvement
142 Quality experiences of involvement 143 Quality
environments for involvement 146 10 Impact 151 Why we need
to know about impact 152 Designing an assessment of impact
153 Recognising impact 154 Recording impact 157 Reporting
impact 161 11 International perspectives 165 Europe 166
The USA 168 Canada 169 Australia and New Zealand 170
Developing countries 172 12 Conclusion 176 Summary
conclusions 177 Service user involvement enhancing
evidence-based practice178 Enriching professional
education 179 Teaching service user involvement in
research 180 Developing professional roles 184 Securing
service user s commitment to involvement 185 Further
reading 188 Web-based resources 189 Index 191
506 1 400 annual accesses.|5UkHlHU
650 0 Nursing|xResearch|xMethodology.
650 0 Medical care|xResearch|xMethodology.
700 1 Morrow, Elizabeth,|d1975-
856 40 |uhttps://www.vlebooks.com/vleweb/product/
openreader?id=Hull&isbn=9781444347029|zGo to ebook
936 Askews-P-2016/17
