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001    AH21639738 
003    StDuBDS 
005    20150127014518.0 
007    cr|||||||||||| 
008    110829s2012    enka   fs     001|0|eng|d 
020    9781444347029 (e-book) 
020    9781444334722 (pbk.) 
020    9781444347029 (PDF ebook)  : 
020    9781444347050 (HTML ebook)  : 
020    9781444347036 (ePub ebook)  : 
020    9781444347043 (Mobipocket ebook) 
040    StDuBDS|beng|cStDuBDS|dStDuBDSZ|dUkPrAHLS 
050  0 RT81.5|b.H36 2012 
082 04 610.730721|223 
245 00 Handbook of service user involvement in nursing and 
       healthcare research /|cElizabeth Morrow ... [et al.]. 
260    Chichester :|bWiley-Blackwell,|c2012. 
300    xvii, 203 p. :|bill. 
505 0  Contributors viii About the authors x Preface xii 
       Structure of the book xv Acknowledgements xviii Part I 
       Preparing 1 1 Perspectives and expectations 3 Approaching 
       service user involvement 4 Political and research contexts
       of involvement 7 Historical roots and social movements 8 
       Perspectives of service user involvement 12 What is known 
       about the impact of involvement? 14 Current challenges 15 
       2 Concepts 18 Service users 19 Involvement 21 
       Representation 22 Experiential knowledge 24 Empowerment 25
       Participation 26 Models of involvement 27 A theoretical 
       framework for approaching service user involvementin 
       research 30 3 Designing involvement 36 Deciding who to 
       involve 37 Building in opportunities for involvement 40 
       Research methods and approaches to involvement 42 Planning
       involvement 48 Payments 48 Research ethics and governance 
       54 4 Working relationships 59 Making connections 60 
       Working environments 61 Roles and responsibilities 66 
       Legal and ethical issues 67 Training and support 68 
       Communication 70 Feedback and reflection 72 Embedding 
       service user involvement 72 Part II Learning 77 5 Patients,
       clients and carers 79 Patients who are receiving health 
       care 80 People who are very sick 83 People with rare 
       clinical conditions 85 People who find it difficult to 
       access services 85 People who do not have the capacity to 
       consent 87 Carers 89 6 Involvement over the life course 93
       Children and their parents 93 School-age children 97 Young
       people 100 Adults 102 Older people 103 7 Seldom-heard 
       groups 106 Involving seldom-heard groups 107 People with 
       physical disabilities 108 The deaf and people who are hard
       of hearing 110 People who are blind or partially sighted 
       111 People with learning disabilities 111 People with 
       degenerative cognitive impairment 113 People with mental 
       health problems 113 Black and minority ethnic groups 116 8
       Service user-led research 120 Personal health research 121
       Volunteer networks 121 Service user-led organisations 123 
       Charities and not-for-profit organisations 125 Experienced
       service user representatives 127 Academic service user 
       researchers 128 Part III Evaluating 133 9 Quality 135 
       Indicators of successful involvement 136 Documenting 
       service user involvement work 137 Using reflective 
       techniques 139 Reflexivity and service user involvement 
       142 Quality experiences of involvement 143 Quality 
       environments for involvement 146 10 Impact 151 Why we need
       to know about impact 152 Designing an assessment of impact
       153 Recognising impact 154 Recording impact 157 Reporting 
       impact 161 11 International perspectives 165 Europe 166 
       The USA 168 Canada 169 Australia and New Zealand 170 
       Developing countries 172 12 Conclusion 176 Summary 
       conclusions 177 Service user involvement enhancing 
       evidence-based practice178 Enriching professional 
       education 179 Teaching service user involvement in 
       research 180 Developing professional roles 184 Securing 
       service user s commitment to involvement 185 Further 
       reading 188 Web-based resources 189 Index 191 
506 1  400 annual accesses.|5UkHlHU 
650  0 Nursing|xResearch|xMethodology. 
650  0 Medical care|xResearch|xMethodology. 
700 1  Morrow, Elizabeth,|d1975- 
856 40 |uhttp://www.vlebooks.com/vleweb/product/
       openreader?id=Hull&isbn=9781444347029|zGo to ebook 
936    Askews-P-2016/17