| Subject |
Human genetics -- Databases -- Moral and ethical aspects.
|
| Descript |
1 online resource (xi, 283 pages) : digital, PDF file(s). |
| Content |
text txt |
| Media |
computer c |
| Carrier |
online resource cr |
| Note |
Title from publisher's bibliographic system (viewed on 05 Oct 2015). |
| Contents |
Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson [and others] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala. |
| Note |
Unlimited number of concurrent users. UkHlHU |
| Alt author |
Häyry, Matti, editor.
|
| ISBN |
9780511611087 (ebook) |
|
9780521856621 (hardback) |
|
9781107652576 (paperback) |
|
